The vision of GBS/CIDP Foundation International is that each individual affected by CIDP, GBS, or MMN has easy access to early and precise diagnosis, low-cost treatments and reliable support services.
The theory is that the body’s immune system, which usually protects itself, identifies myelin as unfamiliar and attacks it. Myelin is a vital part of the peripheral nervous system. It coats the nerve axon (the long, wire-like part of a nerve cell) similar to insulation covering an electrical wire. The nerves expand from the spinal cord to the rest of the body, arousing muscle contraction and spreading sensory information back to the nervous system from receptors in the joints and skin.
This myelin lets electrical impulses proficiently travel down the nerve axon. When myelin is removed or damaged, these electrical impulses are lost or slowed, and messages sent from the brain are interrupted and may never make it to their ending destination. What instigates this process is not yet clear.
Offering support to our community is utmost to our grass-roots mission. All volunteers have a relation to GBS, CIDP or variants via a personal journey or due to a loved one or family member. The Foundation knows how critical it is to get the care and support needed to live through these trying times. While we are not physicians, we do connect ourselves with some of the best doctors on the globe. Our Global Medical Advisory Board has made a pledge of support for our constituents and to make sure our patients have access to their resources via the Centers of Excellence.
We have local chapters everywhere on earth. Find the chapter nearest to you and bond with volunteers who have lived through a parallel journey. Ask for our printed literature and gain access to the current and most knowledgeable information.