GBS/CIDP Foundation International

The vision of GBS/CIDP Foundation International is that each individual affected by CIDP, GBS, or MMN has easy access to early and precise diagnosis, low-cost treatments and reliable support services.

The theory is that the body’s immune system, which usually protects itself, identifies myelin as unfamiliar and attacks it. Myelin is a vital part of the peripheral nervous system. It coats the nerve axon (the long, wire-like part of a nerve cell) similar to insulation covering an electrical wire. The nerves expand from the spinal cord to the rest of the body, arousing muscle contraction and spreading sensory information back to the nervous system from receptors in the joints and skin.

This myelin lets electrical impulses proficiently travel down the nerve axon. When myelin is removed or damaged, these electrical impulses are lost or slowed, and messages sent from the brain are interrupted and may never make it to their ending destination. What instigates this process is not yet clear.

Offering support to our community is utmost to our grass-roots mission. All volunteers have a relation to GBS, CIDP or variants via a personal journey or due to a loved one or family member. The Foundation knows how critical it is to get the care and support needed to live through these trying times. While we are not physicians, we do connect ourselves with some of the best doctors on the globe. Our Global Medical Advisory Board has made a pledge of support for our constituents and to make sure our patients have access to their resources via the Centers of Excellence.

We have local chapters everywhere on earth. Find the chapter nearest to you and bond with volunteers who have lived through a parallel journey. Ask for our printed literature and gain access to the current and most knowledgeable information.

FSH Society

Facioscapulohumeral muscular dystrophy is generally categorized as a neuromuscular disease, like all muscular dystrophy types. Muscular dystrophies are denoted by defects in the physical, structural, and biochemical components of muscle, the death of muscle cells and tissue, as well as progressive skeletal muscle weakness.

FSHD gets its name because the advance loss of skeletal muscle is typically across the muscles in the upper arm, back, and face. Also, the legs, hips, and abdominal are affected in numerous patients.

Muscle weakness frequently sets in asymmetrically, disturbing only one leg or arm. Because of this, the symptoms are incorrectly attributed to a sports injury or strain. Symptoms may come early, years before a formal diagnosis. These could be:

  • Failure to whistle
  • Failure to use a straw
  • Eyes that don’t completely shut while sleeping
  • Trouble with such exercises as pull-ups and sit-ups
  • Shoulder blades that look like wings
  • Trouble raising arm over shoulder
  • Dropping feet
  • Feeble lower abdominal muscles
  • Weakening of chest muscles
  • Curved spine (lordosis)

An approximated over 860,000 people in the world suffer from a curved spine. FSHD strikes people of every ethnicities and races. About 10% of these individuals have symptoms before the age 10. The illness is inherited and can affect several family members across several generations. Around 30% of cases are in families with no prior history. The bottom line is no family or individual is immune.

As long as the FSH Society is around, no patient will have to deal with this illness alone. And with substantial donations from families, patients, sponsors, major donors, and friends, we’ll keep working to fast-track research leading to treatments.

The globe’s biggest grassroots network of people with FSH muscular dystrophy, their families, and research activists, the FSH Society was established in 1991 by two patients, Steve Jacobsen and Daniel Perez. The FSH Society aids individuals via outreach, education, and medical research. They also advocate for raised industry and government investment in FSHD.

Acadia Center

Acadia Center works at the junction of climate change and energy, including transportation, land use, carbon emissions reduction, mitigation, consumer-side energy resources, and power generation.

Acadia Center keeps the big picture in plain sight while following targeted and thorough advocacy efforts across and within numerous economic sectors. This comprehensive approach is needed to having high-impact results. For instance, Acadia Center’s EnergyVision details how changes in many sectors could put the northeast region on track to reduce emissions by over 80% by 2050.

Acadia Center undertakes tests from several angles, with expertise and strategies that go across several disciplines. This method shows the difficulty of the issues and influences a range of skillsets and networks.

Energy efficiency is the cleanest and cheapest fuel. It produces big savings for consumers and is the basis to a sustainable, carbon-less energy future. By lessening need on the power grid, efficiency reduces the problem of shared infrastructure costs.

Acadia Center promotes and designs complementary policies and market-based strategies that encourage cleaner energy supplies in every sector.

Acadia Center spreads policies that level the playing field so renewable power can equally participate and thrive. Allocated energy resources like rooftop solar create clean energy while improving customer control over energy bills and decreasing the need for grid infrastructure and polluting power plants.

The Next Generation Solar Framework program offers a maintainable policy approach that compensates solar based on proven value, while confirming equitable payment for sustaining the grid.

RGGI has assisted Mid-Atlantic and Northeastern states lessen power plant emissions considerably while producing health and economic benefits in the region. This efficient model can and should be spread to other states, as well as cover additional sectors like heating fuels and transportation. Emissions reductions can also be accomplished by putting a price on pollution via a carbon fee that encourages changes in behavior and evens out the field for cleaner energy supplies.

National Pediatric Cancer Foundation

A nonprofit organization, the National Pediatric Cancer Foundation is devoted to supporting research to wipe out childhood cancer. Their goal is to fund research to develop less toxic, more targeted treatments by working with leading medical facilities around the nation.

A great part of cancer research centers on adult treatments and is performed within the walls of specific institutions. They fund clinical trials and work together with a group of cutting-edge hospitals around the nation to come up with targeted, toxic-free treatments. The aim is to improve the survival rate of children with cancer.

For over 26 years, they have become the one bright light for children who are battling cancer. They have given millions of dollars to research and their clinical trials are producing incredible discoveries that are saving a lot of children’s lives.

In the beginning, the Pediatric Cancer Foundation funded seed grants at St. Joseph’s Children’s Hospital in Tampa, the University of Florida in Gainesville, the University of Miami School of Medicine, All Children’s Research Institute in St. Petersburg, and the Moffitt Cancer Center in Tampa.

In 2005, the Pediatric Cancer Foundation established the Sunshine Project, a pioneering collaboration with one mission which is to bring together top researchers and physicians to develop new treatments and improve the survival rate for children battling cancer. With the founding of the Sunshine Project, the Pediatric Cancer Foundation has created a business model that maximize the potencies of researchers from various fields of science and simplifies the procedure to quicken the development of new treatments.

The best part is that the Pediatric Cancer Foundation has shown that this model works. Since 2005, they have funded four clinical trials (phase one). New treatments have been, and continue to be, tested. These trials and treatments bring great promise for children who have not had good results under the normal treatment protocol. In 2016, the Pediatric Cancer Foundation re-branded and changed its name to the National Pediatric Cancer Foundation.

India Development and Relief Fund (IDRF)


Stopping the cycle of poverty in Nepal and India by endowing ostracized people with services, infrastructure, and skills founded in ecological development.


We feel an unwavering change in disadvantaged areas can only occur when individuals get in front and

direct the change.  Our techniques give control and not a handout to the poor.

We create our programs to generate benefits for women and children who are important players in the struggle against poverty.  We energize ostracized individuals with live skills, self-governance, and educational abilities so they are prepared to make changes to their lives and the lives of their children.

We also feel every person has the right to live and grow with dignity.  We feel that everyone has the right to have the basics for their day-to-day living. Our programs serve the underprivileged without any regard to caste, creed, or religion.

In our battle against poverty, we realize the need to offer resources that can increase development. Though, a shortage of resources is not the only problem.

Poverty is inherent and goes further than material deficiency. After years of marginalization and social oppression, many poor Indians have given themselves to a destitute way of living. A crucial part of the solution rests in aiding them to see their power to improve their lives and change. We feel that local groups are equipped best to realistically tackle this need.

Therefore, IDRF joins forces with local non-governmental groups to give power, confidence, and resources to needy individuals. We have fundraisers to offer grants to certain grassroots groups which work to empower women, enhance education, increase green development, and health care.

Moreover, IDRF distributes funds to these groups based on the project, using the money raised in the most meaningful way. Almost each project is co-financed by a local NGO. The objective is to make these individuals completely self-supporting.

Earth Hour

From fighting for environmental policies and laws to fundraising for a brighter future, people make

Earth Hour imaginable. Organized by WWF and additional organizations, Earth Hour’s biggest strength is the power of people.

Beginning in 2007 as a lights out affair in Sydney, Earth Hour is now the globe’s biggest grassroots movement for the world, motivating people all over the earth to take action for nature and our planet.

Most of the sources we use come from the earth. That’s why we must do our part to safeguard the world around us.

This planet is loved by all who lives upon it. Together, we all can start never-before-had talks about nature and the exceptional diversity of life we share our earth with.

Every year zillions of folks, landmarks, and companies put aside one hour to turn off their lights, get loud, and hold events for Earth Hour. The goal is to celebrate the multiplicity of life on earth. Every year, everyone is invited to commemorate Earth Hour. Find a celebration and join.

Climate change delivers a major threat to all we love. Rising sea levels, frequent weather extremes, and melting glaciers will leave no continent unharmed. Effects are already being sensed by numerous ecosystems and communities all over the world. Water supplies are shortening, crop yields are falling, oceans are becoming more acidic and forests are burning. This has severe consequences for our security and means of support.

As quickening climate change and astounding biodiversity loss endangers our planet, Earth Hour efforts to inspire never-before-had discussions on the loss of nature and the insistent need to protect it.

Earth hour is a chance for 120 zillion of folks all around the globe take part in Earth Hour to support climate change. By turning off your lights for 60 minutes, you can make a huge difference by helping to decrease global warming effects on this planet.

My Stuff Bags Foundation

Over 250,000 neglected, abandoned, and abused children across America are taken out of dangerous home environments every year. They usually come to foster homes or crisis centers with not many personal items.

The My Stuff Bags Foundation gives children hope and comfort by offering them a My Stuff Bag full of things they require to aid them in settling into their new environment, like toys, clothes, security blankets, toiletries, and stuffed animals. My Stuff Bags has given bags to over 300,000 children in over 45 states since it was established in 1998. Their objective is to have a bag for any child taken out of her or his home.

Since the beginning, the My Stuff Bags Foundation has been concentrating on the needs of a typically forgotten group of American children which are those who must leave everything behind when they are saved from neglect or abuse and put into foster care. Or, those who must escape with their mothers to the security of a battered women’s shelter. Sadly, these children arrive at shelters with nothing more than the clothes on their backs and no hope for their future. Agencies that protect these scared children often lack the resources to offer anything outside of safe shelter and food. Also, the little belongings these children might collect along the way are usually carried around in trash bags, encouraging others to refer to them as “trash-bag kids.”

My Stuff Bags are cheerful blue duffels packed with new books, toys, school supplies, clothing, toiletries, and “security” blanket. Everything is theirs to keep.

Packed with items they greatly need as they adjust to their new surroundings, My Stuff Bags offers things to do and to hold on to during this difficult time. Moreover, since most things in the bags are given by thoughtful folks from across the US, and the bags are put together by faithful volunteers, they realize that lots of people do care about them.

Campaign for Tobacco-Free Kids

Tobacco usage is the chief preventable cause of death in the US. Almost 20% of high school students smoke and over 1,500 more students are becoming daily smokers. The mission of Campaign for Tobacco-Free Kids is to stop kids from smoking, assist smokers in quitting, and safeguard folks from inhaling secondhand smoke. Some precise initiatives they are working toward are lobbying for higher cigarette taxes and legislation to give the FDA authority over tobacco marketing and products.

The Campaign for Tobacco-Free Kids is a principal force in the war to decrease tobacco use and its deadly toll in the US and around the world. Their vision is a future free of the disease and death brought on by tobacco.

They work to save lives by supporting public policies that stop kids from smoking, help smokers quit and protect everyone from secondhand smoke.

In the US, they promote at the local, state, and national levels for the verified policies that diminishes tobacco use and save lives.

Internationally, the Campaign for Tobacco-Free Kids helps governments and non-governmental groups in promoting and fulfilling these policies. They are an affiliate with the Bloomberg Initiative to Reduce Tobacco Use, which centers on low-income and middle-income nations in which over 75% of tobacco-related deaths will happen in the near future.

While we have made real progress in America, tobacco still kills over 475,000 citizens each year. The worldwide death toll is over 5 million a year and steady rising. With everyone’s support, they can win the war against the world’s top cause of preventable death and reduces the number of lung cancer diagnoses.

Founded in 1996, the Campaign for Tobacco-Free Kids is a 501(c)(3) non-profit organization that has no tobacco industry or government funding. They depend on contributions from philanthropic foundations, businesses, other non-profit organizations, and people like you.


Canines for Disabled Kids

Canines for Disabled Kids (CDK) is a fairly new charity (established in 1998). This group offers assistance dogs to children under age 12 who have physical disabilities, hearing disabilities, or autism. Since it started, CDK has sponsored more than 80 assistance dogs. Besides aiding with everyday tasks, these assistance animals give companionship to the little ones, assisting them in developing responsibility and confidence.

The objective of CDK is to endorse the conception of child-canine service teams to inspire social awareness and independence. They achieve this by:

  • Encouraging guidance, referrals and advocacy which helps families in deciding if a service dog is the right tool for their child and then seeking the right service dog training program to fulfil their child’s specific needs
  • Providing scholarships for the families of children with disabilities to help with the cost of training a service pet
  • Presenting educational programs to civic groups, schools, businesses, and other community organizations, intended to deliver information which makes those communities more accessible and friendly to child-canine teams.

Canines for Disabled Kids (CDK) started in 1998 as an offshoot of the NEADS Dog for Deaf and Disabled American’s training program. Not many assistance dog programs are eager to offer trained assistance dogs for little children. CDK recognized a need and did something to filled it. It was conceivable to train animals to aid children with hearing impairments, disabled children, and autistic children in the classrooms.

In an effort to enrich the courage, independence and education of children with disabilities across the nation, they began to sponsor dogs that would work with the child and the parents. Soon, hundreds of applications were arriving to the program. Since 1998, CDK has sponsored more than 150 assistance pets, dogs that can aid children with different disabilities, and some with the parents as helpers.

PAWS Chicago

Every year, PAWS Chicago saves more than 4,500 homeless dogs and cats. After the rescue, the 1st stop is at PAWS Chicago’s Medical Center, the place where all animals get personalized medical care, vaccinations, and spray/neuter from qualified veterinarians. While numerous are in good health and all set for adoption, most of them, approximately roughly 2,500 animals yearly, need more medical treatment.

PAWS Chicago is typically the last hope for these cats and dogs, in particular those bearing injuries and illnesses that other rescues aren’t able to treat.

PAWS Chicago is the only shelter that has the medical resources and medical crew to offer extensive, and usually crucial, medical care for injured, sick animals. There are plans to develop the present medical center so that they can increase the number of dogs and cats being treated at PAWS.

The expansion of the medical center will renovate a little over 15,000 square feet of current uncompleted and undefined space into an innovative medical facility. This new medical center will enable PAWS Chicago to take in and treat more animals. The extension will also double their:

  • Surgery room capacity
  • Isolation space
  • Suite space for homeless dogs and cats
  • Quarantine area
  • Volunteer center
  • Play area
  • Foster care program

Paula and Alexis Fasseas (PAWS founders) “a-ha” moment came when the couple saved a stray dog in 1996 in Crete. The dog was killed once tourist season was over. The couple was appalled Greece treats its homeless dogs with so inhumane. They were driven to help homeless animals back home.

In 1998, PAWS Chicago began with an adoption affair, Angels with Tails. The message that homeless animals necessitated to be saved was taken to the public. The affair was held on the streets and in the store in the high-end North Michigan Avenue area. Local businesses passionately agreed to display the dogs and cats in their storefront windows.